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Below is a listing of supportive groups, forums and literature that will hopefully make your day to day life with PKU easier.

PKU Georgia Online Support Group has gone social!

Facebook

'Like' our Facebook Page and join the conversation with other Georgia PKU community members.

We look forward to meeting you online or at our next face-to-face event!

Contact Julie or Kristen for more information.

Recipes

Apple Pancakes
Apple Porridge
Brownies
Butter Cookies
Carrot Bread
Creamsicle Cake
Eggplant Spread
Enchiladas
Fruit Compote
Portobello Mushroom Burger
Potato Salad
Pumpkin Bars
Yam Biscuits
 
Emory University Metabolic Nutrition Program recipe collection (PDF)

Cookbooks/Diet References

Apples to Zucchini: A Collection of Favorite Low Protein Recipes
by Virginia Schuett and Dorothy Corry

Low Protein Cookery for PKU by Virginia E. Schuett

Low Protein Food List for PKU by Virginia E. Schuett

Additional Books and Order Forms - http://www.pkunews.org/diet/diet.htm

PKU Food List by Rani H. Singh, PhD, RD, Erica Lesperance, RD and Karen Crawford, BS - Distributed by Emory University, Department of Pediatrics, Division of Medical Genetics

Order Form - http://genetics.emory.edu/NUTRITION/nutrition_education_materials.php

Literature

NPKUA Releases New PKU Binder!

Robert Guthrie – The PKU Story: Crusade Against Mental Retardation by Jean Koch

The Child Who Never Grew, Second edition, 1992 by Pearl S. Buck

The enigma of medical foods, 2007 by Rani H. Singh (PDF download)

Additional Literature Listings - http://www.pkunews.org/support/books.htm

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Medical Food (Formula) and Low-Protein Food Companies

Abbott Nutrition
Applied Nutrition Corp
Cambrooke Foods
Dietary Specialties
Emory Metabolic Formula and Food Store 
Ener-G Foods
Lil’s Dietary Shop
Maddy’s (Applied Nutrition Corp)
Mead Johnson Nutrition
Med-Diet
Nutricia North America
My Special Diet.com
PKU Perspectives
Rich’s
Taste Connections
Turtle Mountain (So Delicious products)
Vitaflo

Websites of Interest

American College of Medical Genetics
BioMarin
Cook for Love
Emory University, Department of Human Genetics
Genetic Alliance
Grand Power
National Institutes of Health (NIH)
NIH Clinical Trials
National Organization for Rare Disorders
National PKU Alliance
National PKU News
Patient Power (PKU Series)
Save Babies Through Screening Foundation
Southeast NBS & Genetics Collaborative
Southeastern Regional Genetics Group 
STAR-G PKU Fact Sheet
State of Georgia Screening Information

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